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June 21/12 - Relay 2012 Recap

6/21/2012

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Last Friday (June 15/12), Team Darrel participated in the Canadian Cancer Society's Relay for Life in Fergus for the fifth time.  Each year, family and friends join with me to honour and remember not only Darrel, but other loved ones touched by cancer.  As we all know, Cancer does not discriminate by Age, Gender, Religion, or Skin Colour.  Unfortunately, everyone has a story to tell, and I've always found Relay to be an excellent place to share those stories,  whether it be with people I know, or complete strangers brought together for the event.
 
As always, the Relay began with the Survivors' Introduction and Victory Lap around the course.  Each year, there are new faces added, and regrettably, others that are no longer with us to take part.  One of the new faces for 2012 was my father John.  Being a more private man, he had been reluctant to put on the Yellow Survivor Shirt in 2011, though he certainly qualified through his battle with prostate cancer.  His opinions were slowly altered after seeing others 
taking part, some he knew very well, yet never had any idea they had been dealing with cancer themselves.  While some cancers are brought on by lifestyle choices, others are not, and there is no need hide the fact, and/or feel ashamed.  It is not about drawing attention to ones self in a personal nature, but attention to the cause, and show that progress is being made (though unfortunately in some areas more than in others).  Several people came up to me early in the evening, and were surprised to learn about what my father had been through.  We may have lost Darrel, and countless others, but my father is still with us, and for that, I am very grateful!
 
"Remember", "Celebrate", and "Fight Back"...those are the 3 main thrusts that the Relay hopes to promote for the public, and of course, with all those participating.  My family remembered Darrel, celebrated my father's struggles, and this year, I was asked to help out in the "Fight Back" ceremony.  Due to a scheduling conflict, the original speaker was unable to make it to the Fergus Relay, so the organizers approached me the day before.  Though much of my presentation was already scripted, I did add details of Darrel's fight, and the need for awareness, and to Fight Back!  When Darrel was diagnosed, I had never heard of neuroblastoma, or that even childhood cancer existed. But my family and I know differently about that now, and hopefully others that heard my words will know about it now too.   It is important for us to not only be willing to join together against cancer at the annual Relay, or purchase Daffodils in April for Cancer Month.  Cancer does not ever rest, and neither should our
fight with it!!
 
I'm actually going to quote myself from a previous Blog, as the issue continues to be brought up: 

"There are many within the online community who continue to shun involvment in any functions by the Canadian and American Cancer Societies because of their poor track records in funding the various childhood cancers.  While I fully realize the dollars are disproportionally 
distributed among the various types of cancers, the Relay is still an excellent way for my family to pull together, and spread awareness about childhood cancer at the same time.  I am personally active with The James Fund, Childhood Cancer Canada, and St Baldrick's, but the Relay is sometimes more than enough for the other family members (and is the only event of its kind that actually takes place in a same town like ours).  We all try to do our
part, and everyone channels their energies and places their priorities in a different order.  Spreading Awareness is about Spreading Awareness...we should not be critical of others methods in the aim and goal is true and the same." 
 
This, in  a nutshell, is my opinion on the matter.  To each his/her own, but please remember we all want to achieve the same outcome.  Each year the Cancer Society allows me to put neuroblastoma and childhood cancer pamphlets in their Information Tent at Relay (though it is disappointing they don't have their own to share), and I am regularly asked to help out in some special way.  Spreading the Word is one of the most important aspects of what I do, and I appreciate every opportunity that presents itself to do so.
 
At this point, I'd like to say Thank You for everyone's contributions to making this year's Relay for Life the success it was!! With your efforts, Team Darrel raised $2,165.00 for the Canadian Cancer Society this year, bringing our collective 5 Year Total to $13,202.00!!!  The Fergus Relay donations came in at just under $44,000 for 2012!!!  Thanks Again!!
 
Team Darrel 2012 was: Stephen Robb, Kira Robb, Lauren Robb, John Robb, Helen Robb, Bryan Robb, Janet Willfang, Kim McKnight, Morghan McKnight, and Erin Vink.
 
In addition, another $75.00 was raised for The James Fund for Neuroblastoma Reserach at SickKids.
  
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June 11-17, 2012 was International Neuroblastoma Awareness Week.  Darrel's Playground was asked to help be a part of the Canadian Administrators for the online campaigns on Facebook and Twitter.  It was an honour to be involved in such a meaningful and rewarding experience on a global scale.  We received many posts, comments, and made new connections throughout the week, that we hope will keep neuroblastoma and childhood cancer awareness in people's minds for days,  months, and years to come.  As the Facebook and Twitter accounts are only
open  for a short period of time each year, we are planning to have a more organized  and structured website up and running for the 2013 event.  Thanks again to all  who visited and "Liked" our Page.
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Father's Day-Conflict

6/19/2012

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Reposted from: http://www.grievingdads.com/fathers-day-conflict

“Father’s Day – Conflict”
By Kelly Farley

Here we are, another event that is about to occur that triggers emotions in men that have lost a child (or have lost a dad for that matter), Father’s Day.  Since I have lost two children during different times of the year, I have the pleasure of dealing with multiple event triggers throughout the year.  It seems like my wife and I are constantly thinking about birthdays, death days, Holidays, Father’s and Mother’s Day.

I was telling my wife that I was struggling with writing a topic about Father’s Day this year.  I was looking for something profound to write about, something that will strike a cord and be different from other Father’s Day topics.  My wife said, “Why, does it have to be “so powerful, speak from the heart and the truth about these types of days.””  Excellent point.  As our
conversation went on, we started to discuss how for her, Mother’s Day is an internal conflict.  She wants to be recognized as a mother, but she also struggles with the fact she has no living children.

I thought about that for a while and I have to say this internal conflict occurs on most of these trigger days.  You do not want anyone to forget you are a father or that you have lost a child, but it’s also is a tough day.  Bittersweet from the standpoint that I am proud to be their daddy, but it’s hard not to be able to spend the day with them or get a phone call wishing you Happy
Father’s Day.  I often get annoyed during these times because I rarely get a Father’s Day wish from my direct family, but I know others in the family are receiving them.  It’s like since my children are dead, I am no longer a Father.  That is the conflict, I know they don’t believe that, but sometimes I allow myself to think they do.  It goes back to the internal struggle of do we
acknowledge the day or do we not.

Over the years, my wife and I have decided to acknowledge these days by giving cards that are not only from each other, but also from Katie and Noah. Sure it triggers emotion, but is that such a bad thing?  I have come to learn that it’s not.  I believe they deserve for me to feel the pain of losing them.  I don’t mean all day, every day, but just for a moment.

I was on a phone call yesterday with a guy that I do business with as part of my job.  I know he lost a baby to SIDS 25 years ago.  I asked him, “How are you with Father’s Day?”  He responded with “I am ok with it, it took me a while to get to the point, but it doesn’t trigger the emotion it did early on”.  I thought about what he said and I agreed with what he said.  Although the day was tough early on, it has become a day where I feel a strong sense of pride to be the dad of my two beautiful babies.  I love the feeling of being their dad.  Yeah, I wish they were here to spend the day with me, but I know they’re with me in other ways.

Wishing each and every one of you a Happy Father’s Day.

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    The majority of all these entries were written by Darrel's father, Stephen.  For those that are not, efforts have been made to give proper credit where it is due.

    The bulk of the posts are in the June 2011 Archives Section, as that is when I transferred them over to this site.  Category Tags should allow you to find entries easier.

    I've tried to correct spacing issues on many of the entries, as most of the older ones have been copied from different sites I've used in the past. I apologize if some have been overlooked.

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