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Sept 9/24 - No Ordinary Love

9/9/2024

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Even after 17 years, Darrel's death still can, and usually does, hit me as though it happened just yesterday. As I've said before, the day that thinking about my son does not produce some kind of an emotional response, is the day I know I will need help. When a new Department Manager recently asked what I was going to be doing on my Vacation this week, and I said nothing, he wondered aloud why I would take it so late in the Season then. Though it was an innocent and casual small-talk type question, I let him know why I selected this week, as well as the last week in May every year for my Holidays. It is not that I don't want to be around other people, but these are two times of the year I want to feel whatever I feel...whenever I feel it. No worries about any unexpected triggers, setting off a short fuse, or even behaving in an uncharacteristic manner for me. The likelihood of such a thing happening is quite rare, but putting in a little buffer room isn't such a bad idea either. Working in Retail, I come in contact with a lot of people, both staff and customers, which can often be unexpectedly harsh and/or stressful enough on the best of days.

Lauren and Jacob have been sending me a steady stream of Photos of my granddaughter Hannah. We were out to Alberta to meet her shortly after she was born, but children at this age change almost on a daily basis. I'm hoping to get out again before the end of the year, but you never know how/if/when everyone's schedules will line up. Either way, I'm certainly grateful that modern technology allows us to still keep in close contact from across the country.

I spent much of the day at the hospital in Fergus today, undergoing a routine medical procedure. While it may carry the old Groves Memorial Hospital name, it is an entirely new building, and not the same one in which Lauren and Darrel were born (Kira was born in Brantford while we were living there). Though the majority of Darrel's treatments were either in Toronto or Kitchener, there were still some visits for him to the old Groves. Being in a hospital with direct ties to Darrel over those years might have added another level of uncomfortableness to the events of the day, which I'm glad were avoided. 

A couple of years ago, also on a day in early September, I ran into Doctor Wilson, who looked after Darrel while he was in Kitchener's Grand River Hospital. I didn't say anything to him then (as we were at Grand River visiting my mother at the time), but I got the impression he recognized my face, though not knowing exactly from where. Doctor Wilson and Head Pediatric Oncology Nurse Patti Bambury always treated Darrel amazingly well every time he was having his Counts checked, or when he was admitted to the Ward. 

On September 9, 2007, even though it was a Sunday, they were in constant contact with us in Fergus, getting updates, and ordering changes to Pain Management immediately as needed. Darrel's mother, being a nurse, was given permission to adjust the Pain Pump/"Dance Partner", and medications as requested by them, without first waiting for the Homecare Nurse's arrival. Wilson and Bambury would go even further beyond any professional expectations, and drive to Fergus later that night, after Darrel was taken from his family forevermore , to sign and notarize all the medical and legal paperwork...then and there...on the spot. By doing so, Darrel would never be poked and prodded by anyone ever again, and was allowed to spend one final night in our Home. This kindness, generosity, and thoughtfulness will never be forgotten by me. 

Love and Miss You Little Man


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On July 26, 2024, the Darrel's Playground website surpassed the 65,000 Hits threshold. Though there are now seldom Updates to the Site, especially with the Twitter/X link anymore, the fact that we are still getting so many new visitors makes me feel quite thankful.

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September is Childhood Cancer Awareness Month, so please consider turning your Social Media GOLD to honour all the children who have, are, and will battle one of the many forms of childhood cancer in the future.
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Sept 9/23 - Say His Name

9/9/2023

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For the last couple of years, I've reduced myself to doing Blogs only twice a year...Darrel's Birthday in May, and of course, every September 9th. Over the past 16 years, making these entries, along with occasionally re-reading Blogs I've made in the past, have sustained me in ways I can not possibly describe. That being said, I am finding it difficult to have anything new and/or relevant to write about at this time. Being "The Gatekeeper", more or less, of Memories of Darrel will always be a role I take great pride and care in fulfilling, and that will never change. Not a day goes by without some thoughts of Darrel entering my mind. The fact that his Urn sits on a dresser in my bedroom literally means he is the first and last thing I see every day, not to mention his scattered presence in my dreams throughout the week. For the most part, I find this strangely comforting. Keeping him in the here and now is almost as important (to me at least) as reflecting on everything about who he was to me, and to all those who knew and loved him.

I think most of us have an event or memory that is impossible for us to forget. These could be times of joy and/or personal achievement, or of sadness, personal loss, or even anger. My memories of Darrel embody all of these emotions, and so much more. Even now, a mere stray thought from back then can cause an unexpected wave of feelings to overcome me. This certainly does not mean that people should "walk on eggshells" around me, or avoid mentioning Darrel for fear of upsetting me. SAY HIS NAME...my son is as much a part of me today as he was during his ever so brief 7 years with us. There are so many happy things to recall about those years, and I try to dwell on them as much as I do on how and where it all concluded. I do not consider myself to be a "Prisoner of the Past", but to try and avoid and/or forget everything that happened...that would be a true crime! If a day ever comes when thinking about Darrel does not stir something inside me...that is the day I will know I need to seek professional help.

Love and Miss You Little Man

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September is Childhood Cancer Awareness Month, so please consider turning your Social Media GOLD to honour all the children who have, are, and will battle one of the many forms of childhood cancer in the future.
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Sept 9/22 - Freedom...15 Years Later

9/9/2022

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​Darrel would often call out "Freedom" when I arrived to take him Home after a lengthy stay at SickKids in Toronto, or Grand River in Kitchener. This of course, was preceded by usually telling me that I took too long to arrive, as he had been impatiently waiting for me to get there. At 4:06 PM, 15 years ago today, some would argue that Darrel received his Final Freedom. My son was now free from pain. free from suffering, and free from the utter Hell neuroblastoma had put him through for the previous two long years. More religious people than I would often say that Darrel was "now in a better place", or that "God had different plans for him", and/or "Called him Home early". How could there ever be a more "better place" for a 7-year-old boy than being with his family that loved him, and tried to do anything and everything they possibly could do to protect him and keep him safe?

Is this truly the kind of Freedom anyone would desire if given a choice? I am in no way trying to belittle those who find comfort and solace in their faith of choice, but after you cradle the small and frail body of your son seconds after his last breath, it is more than a struggle to try and find sense in it all, as if it was part of some Grand Design. That moment would, has, and is constantly redefining everything about who I was, and who I would become. It is unavoidable to not be altered in some way after dealing with that kind of loss. Whether a person attempts to move forward, by finding strength in embracing the pain, or by attempting to push the sadness of their loss away to cope with it all, it is a choice only that individual can make. Over these many years, I've been in contact with grieving parents that have traveled down each of these paths, along with many variations in between. It is not my place, or anyone else's, to question the moral rightness of any of these decisions, even if we can relate first-hand to some of what they have been through. After all, even 15 years later, I still have moments when I question my own actions and reactions, as the "What Ifs" never...ever completely go away.

As I mentioned in my last Blog, Darrel's sister Lauren was married this past June. It was a beautiful sunny and warm day in Hamilton, ideally perfect for the Royal Botanical Gardens location. Lauren and Jacob (but most likely it was more Lauren) had everything planned out to the last minute, and the last detail. Walking my daughter down the aisle was a very proud moment, yet it probably made me feel older than when I turned 50 in 2021! Lauren had taken extra care to include both Darrel and her Grandma Robb at the reception. In addition to mentioning them in her Speech, a "Wishing You Were Here" Memorial Table was set up in the Hall. This was a thoughtful and moving gesture for me, and especially my father. I had given him a 'heads-up" about her planning to do this, but hearing Lauren's words, and seeing the Photos was more overwhelming than he expected them to be. Later this month, it will be 5 years since my mother passed, and we all miss her deeply. For Lauren to set aside a part of her "Big Day" for them was simply amazing.

Another Milestone was reached a few days ago, as Darrel's dog Lady turned 17! There have been several serious health scares over the past couple of years, but Lady has shown great resilience, and somehow bounced back. Unfortunately, sooner or later, Old Age can and will catch up to her, but today is not that day.

Although it certainly doesn't look like much, and can't provide any real comfort at all, Lady often still curls up in the Classic Pooh Blanket that was on Darrel's bed from the time he was a baby. It is in complete tatters now, with little to none of the plush stuffing that once filled it, or have it's vibrant colours. I only wash it now by hand when needed, as I doubt it would survive a trip through the Washing Machine!

This is a connection between Darrel and Lady that the Blanket embodies to me, so I still keep it around. I doubt Lady shares any such memories of this Blanket after all this time, as she can barely see anymore, and any tangible tie to Darrel has long been removed over the many, many washes since it became one of the Dog Blankets. Yet, it means something to me, and that's all that really matters.

Thank You once again to everyone who continues to read these Blogs, and allowing me to share my thoughts and memories of Darrel with you all. 

Love and Miss You Little Man

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Here is my Blog about that day Darrel died. It is not a pleasant Read, but like many of my older entries, I do revisit it from time to time: http://www.darrelsplayground.com/blogs/sept-1507-the-day-darrel-died

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September is Childhood Cancer Awareness Month, so please consider turning your Social Media GOLD to honour all the children who have, are, and will battle one of the many forms of childhood cancer in the future.

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From Lauren's Wedding
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Sept 9/21 - Social Media and The Second Guessers

9/9/2021

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Fourteen years ago today, everything changed, and my personal world would never be the same again. As our immediate and extended families were being overwhelmed by emotions with the loss of Darrel, word of his passing slowly made its way outside the walls of our Home. Friends called friends, who in turn called other friends. Back in 2007, Social Media and the way most people use the Internet were in their infancy, so even though Facebook may have existed, it certainly wasn't the inter-connected information network that it has become today. At times, I wish that I had had access to all the resources the Internet can provide back during Darrel's treatments...but these weren't readily available to me back then. I am now part of many Support Groups on Facebook, as they have assisted me in getting through some issues I have faced, and I'd like to think my insights have helped others along the way too. Talking with other parents who have travelled down the same unpleasant road as you can provide some solace, as well as guidance to possibilities you had not considered. That being said, there is an Ugly Side to Social Media, which seems to be growing stronger and more prevalent as of late. People who know basically nothing about a given situation hide behind their computer keyboards to weigh in with their unsolicited opinions and advice, as though they are experts on the matter at hand. And for this reason, I'm quite glad that Social Media was not the intrusive behemoth it is today.

This has been especially true lately here in Fergus, after an incident in the very Apartment Building that I live in. Without going into all the details, I'll just say that there was a disturbance with a young man contending with varying levels of mental illness that resulted in a stabbing, a Police shooting, and the death of the young man in question. In a world where Social Media is everywhere, Posts about what people "believed" had happened were on Newsfeeds around the town, country, and even world before this individual's family were aware of anything at all. This is not the way to find out about something befalling your Loved Ones.  Their personal tragedy was made even worse by the Comments and Opinions by people, with absolutely no first-hand knowledge of the altercation (or those physically involved in it) on these Social Media Pages. I was at Work the day everything unfolded, but I have since talked to many of those that WERE here, and even now, I don't have a perfectly clear understanding, yet there are those claiming they have all the data they need to make an "informed opinion". There are those that question how the Police handled the confrontation, but most are extremely harsh on the family of the young man...claiming they could and should have done more, without having a clue as to what steps they had taken, and the struggles they had been dealing with before these 'Know-It-Alls' had ever heard of the young man's name! Talk about kicking someone when they are already down!

As I Grieving Parent, I can certainly sympathize with what an emotional upheaval they are going through, and will probably continue to go through for the rest of their lives. Of course, the way Darrel was taken from us is drastically different from how they lost their son, yet the end result is a young life was lost far too soon, and the questions of "Why" and "What If" will always be with them every waking moment, and linger in their subconscious minds while they sleep. I know we did everything we could for Darrel, but that doesn't stop me from believing that there could have been something...seemingly big or insignificantly small, that if we had proceeded differently, we could have saved him. This has been a part of my daily existence for the last 14 years. Fortunately, my internal struggle with this are not constantly being piled onto like this poor man's family is enduring. Only they know what steps they took, when they took them, and why they took them. They definitely don't need some strangers questioning and second-guessing their decisions, and being accused of not caring enough to act by those who seem to feel they know better...after the fact.

I am by no means against Social Media, as I would be the first to admit I spend far too much time on Facebook, YouTube, and TikTok every day, but I do wish there would be some boundaries that Commenters wouldn't cross. In some of my Blogs, I do probably open-up, and share more than I should, but there are ways they can respond both honestly and respectfully at the same time. People are entitled to holding different opinions, but preaching about them with some kind of false and absolute authority is totally unacceptable. Perhaps, during this COVID era, much of society has forgotten how to interact with others in a civilized and decent manner, if that ever really existed in the first place. Whether the debate is on Politics, Religion, or what to have for dinner, we can agree to disagree without degrading those who have another perspective on an issue.

In the greater scheme of things, there is usually more that unites us than divides us. You would think that supporting childhood cancer research would be one such cause, but many would rather turn their heads, and hope it goes away on its own. This is both foolish and counter-productive, but also one of the reasons we hold Childhood Cancer Awareness Month every September, along with International Neuroblastoma Awareness Week every June. We all have viewpoints that we support, and these are definitely two close to my heart.

Thank You for remembering Darrel today.

Love and Miss You Little Man


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Sept 9/20 - The Year That Wasn't

9/9/2020

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Without much doubt, for the majority of us, 2020 has unfolded, and continues to play-out in ways nobody could have thought possible. All the hopes, dreams, and well thought out plans for this year were soon to laid to waste by the fear, paranoia and the realities caused by COVID-19, as well as the fallout from our respective government's actions, reactions, and/or inactions. As people we know and love took ill and/or died, there was, and also is, a huge financial toll on both businesses and individuals throughout the World. No one could have expected all that has happened since late February, nor does anyone have a Crystal Ball to show them what is to come in the near future. Will there be a Vaccine??? Will there be a Second Wave during the Flu Season???

On a certain level, this strangely reminds me of how 2007 was for my family. The year began with a small sense of optimism, with Darrel working with a tutor to potentially go back to school, not as many extended hospital stays, and all five of us spending more time under the same roof than apart for the first time in a long time. We all were aware that there would be many hurdles still to overcome, but for an ever brief time, we almost came to believe that we could be one of the more fortunate families battling against neuroblastoma. The Scan results from early February, and even worse information at Easter time were both brutal and devastating reminders that childhood cancer knows no limits, and rarely shows any mercy.

I have discussed much of what happened during those last few months in previous Blogs, but needless to say, a great many of those hours, days and months are full of moments that blur together in a soupy haze, while others consist of memories that I can still remember in every precise and painful detail 13 years later. After Darrel's death on September 9, 2007, as we attempted to pick up the shambles of our forever broken family, we had no idea how we would cope, or what a "new normal", a normal missing Darrel, could/would/or should even look like. How would this affect my marriage??? How would Kira and Lauren be able to come to terms with losing their brother??? Questions without Answers...for many of us, that is what 2020 has become, much like 2007 was for my family. And just as there will be potential repercussions of COVID to our society for many years to come, adapting to having Darrel taken far too early from us drastically altered the path our lives seemed to be heading before we ever heard the word "neuroblastoma". Both of these are years that I would much sooner forget ever existed, but that is not the way of things. Time does NOT heal ALL wounds, and it seldom lets you choose what to remember and what it allows you to forget.

On Monday, Darrel's dog Lady celebrated her 15th Birthday! I never was much of a "Dog Person", but shortly after he was diagnosed, Darrel, said he wanted a dog, so that is when Lady came into our family. She may be partially blind now, has a few medical issues customary to small breed dogs, and not as sure of her footing as she once was, but Lady is still pretty much the same dog she was when Darrel with still with us. I often think back to Darrel's Visitations at the Funeral Home, and how Lady just curled up on one of Darrel's blankets we had placed up by his Urn. You could almost tell that she knew that she would never ever see her Best Friend again, and she was trying to remain as dignified and calm as she could, for fear of being taken elsewhere. Every once in a while she would wander around and check out, and even greet some of the long line-up of visitors, but would slowly and quietly make her way back to Darrel's side...one last time. I don't recall her ever barking, growling, becoming unsettled or even needing out during that time, but that was one of the more blurry moments after Darrel's passing for me. To this day, I am still so amazed and thankful that the Funeral Home had been so accommodating and insightful from the moment they heard that Darrel had died (and even before, as one of the Funeral Directors lived just down the street from us, and could tell by the comings and goings from our place that we would be contacting him soon).  I have never heard of or seen a dog present at a Funeral before or since. It may seem like a small and insignificant gesture, but for my family, it a huge difference.

Later this month, on September 25, it will mark 3 years since my mother passed away. The Love and Bond between a parent and a child is unmatched by anything, but a close second is that between a grandparent and their grandchildren. My Parents (Grandpa and Grandma with the Car according to Darrel) had been there to help us with each of the kids whenever we needed them.  It was a bit more difficult at first, when we lived in Brantford and Barrie with Kira, but we were back in Fergus again before Lauren and Darrel were born. There was Pure Joy in their faces every opportunity they had to share with my kids. This was even more true after Darrel was diagnosed with cancer. My Parents took a more active role in keeping a regular routine for my girls when Darrel and his mother were at SickKids in Toronto. As I was working steady Nights, the girls would sleep and spend a great deal of their time with my mother and father. My mother would also help out with the cooking, cleaning, and laundry duties, while still being at her work Full Time, and maintaining their own house too. For some families this would be way too much to ask, but not for mine...and I never even had to ask. They were there then, they were there when things fell apart with Darrel's mother in 2014, and are still there continuing to look out for me and the girls in 2020! Miss You Mom!!

In closing, I encourage everyone to try and find some Positive in all that happens in their daily lives. Whatever it is, there is a good chance that it may never happen exactly like that again. Things can occur beyond our ability to control, fix, or even avoid. If I were to have focused solely on the Negative, I would be bitter, and of little use my daughters or to anyone else...including myself! This is often easier said than done, but I can speak from experience, it is a worthy goal to try and achieve.  Thank You.

Love and Miss You Little Man

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September is Childhood Cancer Awareness Month. Please consider turning your Social Media Profile Gold to honour, remember, and support all the children who are literally in a fight for their lives. 

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Sept 9/19 - Hands...Never Letting Go

9/9/2019

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Darrel is remembered every minute of every day of the year, but mostly on September 9th.  Over the other 364 days, I can often find some happy memories to focus on about his brief 7 years with us, but today...today I allow myself to be sad...and I am fully entitled to be!  Parents who have lost a child NEVER "Get Over It", and Society's inability to understand this is THEIR loss...which THEY need to Get Over!  Though most are good intentioned, there are some that are really more concerned about THEIR Comfort Level than the well being of the person they are claiming to support.  If listening to me talk about my son makes someone feel that uncomfortable, which one of us actually has a problem???  Many of the World's Problems today could be easily solved if people would only worry about how they live their own lives, and not oppose and/or dictate the choices made by others whom they will never even meet. Sounds almost too simple, doesn't it.

It's now been 12 years since the day Darrel was taken from us, and I still take this week off for vacation every September.  I don't expect to be overwhelmed by emotion, but if it does bubble to the surface, I have a right to feel the way I feel.  I have a good idea what my triggers are, but a stray comment, or a familiar sight, sound or smell (especially at) this time of year could affect me in unforeseen ways, so I put a little safe distance in there as a buffer zone.  Being Sad is not unhealthy, unwise, unmanly, or uncommon...it is Human.  The day I wake up and don't feel a sense of loss...THAT will be the day I will seek professional assistance.  

I have 3 children...Kira, Lauren and Darrel. I think about each of them all the time. Like most parents, I fondly recall the day they were born, their first words and the many other firsts that would follow. Like most parents (should), I have had dreams and aspirations for each of my children, and have always looked forward to sharing the dreams and goals that they have set for themselves.  Neuroblastoma may have limited the time I was given to share with Darrel, but it certainly will never negate the fact that he is still as much a part of me today as he was the first time I held his small, frail and innocent hand...or the very last time I held his small, frail and innocent hand, twelve years ago today. I will NEVER "Get Over It", and I will NEVER Let Go!

Love and Miss You Little Man 

September is Childhood Cancer Awareness Month. Please consider changing your Social Media Profiles to Gold for this month. Anything you can do to help make a difference is greatly appreciated. Together Towards A Cure

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Speaking of Darrel's sisters: Kira has returned to Brock University for her firth year/first year of Teacher's College. She has also been accepted to serve as a Campus Head Resident for the second time.  Good Luck and Congratulations Kira!

Lauren is continuing her apprenticeship at Linamar in Guelph, as well as taking courses at Conestoga College.  She has also recently purchased a house with her boyfriend, and is looking forward to all the adventures that are in her future.  Good Luck and Congratulations Lauren!

It should be added that Darrel's dog Lady celebrated her 14th Birthday a couple of days ago, on September 7th.

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The 2019 International Neuroblastoma Awareness Week was held on June 10 - 16, 2019.  Darrel's Playground was once again proud to assist in this Global Effort as on the Administrators.  Thank You to all who joined us this year.

This Website recently surpassed 48,000 Hits on August 30, 2019.  Thank You All!

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On September 1, 2019, I was at City Hall in Cambridge for the Official Childhood Cancer Awareness Month Flag being raised, as well as the City Sign turning Gold for September.  Thank You to Anita and everyone involved in organizing this event.  It is both unfortunate (that it is needed) and somewhat comforting (that such a resource is available) to have a group like Go Gold Cambridge so close to my area.

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I will be selling Raffle Tickets to help support Go Gold Cambridge and their families all through September...which of course is Childhood Cancer Awareness Month!

1st Prize: All Inclusive Trip for 4 (Value $8,000.00)

2nd Prize: Sunwing Travel Voucher (Value $2,000.00)

3rd Prize: Weekend away at Niagara on the Lake

Tickets are: 1 for $10, 3 for $20 or 10 for $50

If you are interested, please let me know. For Out of Area people, it is possible to do an eTransfer, and I can send you a photo of your numbered Tickets. Thank You

More Information at: https://www.facebook.com/GoGoldCambridge/

Email me: [email protected]


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Sept 9/18 - When A Journey Ends

9/9/2018

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It is often difficult to put into words unceasing and ever lingering pain a parent feels when they lose a child. Like most of you, I have had my share (perhaps more than my fair share) of highs and lows...physically, financially, and emotionally.  People usually try to categorize and compare events they deem to be of the "Life Defining" variety. As time goes on, their ranking of these moments will no doubt change...as there will be new adventures (both good and bad) to add, while others no longer will hold to be as important as they once did. For me, the Top of the List never changes, and probably never will.  After all that I've been personally been through, a significant part of all that I was, and all that I would be will be is forever frozen at 4:10 PM on September 9, 2007.  How can being there at the end of a Life you helped to create, and were duty bound to guide and protect, not alter everything about what makes/made you...you? Knowing that whatever I may face in the future, there is little likelihood anything will ever have such an enormous and lasting effect as having my son die in my arms. On that day, I learned what true pain could be.  

For the past 11 years, I've had to contend with my memories of that day.  There is no escape from what happened, nor do I want there to be one. I have (so far) been able to cope (for the most part) with losing Darrel, but not everyone is able to process such a traumatic outcome as balanced as I apparently have.  I still experience good days and bad days...it's just I am better adapting when possible triggers present themselves before me.  It is certainly not my position, or anyone else's, to pass any kind of judgment on how a parent chooses to address what they are going through.  There is no direct correlation between how a person reacts and the depth of their loss, or the underlining love behind it all.  There is no one right or one wrong solution to move forward, but having a strong Support System in place can often play a significant role in the pace of a person's recovery timetable. We are all individuals, and a proven path taken by one person in no way can necessarily translate into a successful route for someone else.

With the death of my mother last year, I've also had to reflect on another life of someone else close to me.  While the family dealt with all the financial issues of her estate in the first few months of her passing, there remains much of her personal belongings and mementos untouched. Every once in a while, my father and I pick a few drawers or boxes to sift through.  Pictures and letters comprise the majority of what we have reorganized so far, but there have been a few unexpected finds.  One of the biggest surprises was the several certificates for her from the Royal Conservatory of Music!  In all my 47 years, I never once had heard my mother play a piano...yet she was quite (apparently) accomplished at the instrument in her younger years. How is it possible that I never had any inkling that she had once had such a talent?  It made me feel a bit better when my father said he had only heard her play once throughout their many years together.  Truly amazes me that someone who knew me so well, and I thought I knew everything about, had such an interesting aspect to them that I was totally unaware of.


Loss is a strange thing, but it is something we all will have to contend with on one level sooner or later.  It is not a weakness, but a part of life.  Hopefully we can grow and learn from our losses.  It is never easy, but who said life was meant to be easy?


With that, I'd like to thank you all for your continued support of my family and this website.


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The 2018 International Neuroblastoma Awareness Week was held on June 11 -17, 2018.  Darrel's Playground was once again proud to assist in this Global Effort as one of the Administrators.  Thank You to all who participated.

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September is Childhood Cancer Awareness Month. Please consider changing your Social Media Profiles to Gold for this month.  Anything you can do to help make a difference will be greatly appreciated. 

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Sept 9/17 - Ten Years Later...Yesterday Once More

9/9/2017

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​What can I say about Darrel that I haven't mentioned many times over the past ten years?  YES, IT HAS BEEN TEN YEARS! Judging by the size of this Blog, apparently quite a bit!  Darrel's smile, wit, laugh, and wisdom beyond his years are always with me in the present day, even though in reality this happened more and more in my distant past.  That is the way it is when we lose someone close to us...we try to hold on tightly to the memories we shared with that person.  Of course, being a bereaved parent, this process is greatly intensified.  This is not to say our grief is necessarily greater to losses suffered by others, but it is certainly different. Parents in my situation are more or less the sole caretakers of all that child was, of all that child will ever be, and held the greatest dreams of what that child could have been.  Whoever said "Time heals all wounds" has never dealt with what many of us have had to endure.  but some days it feels like 10 minutes ago. This all seemed to be having an effect on me earlier this year than in the past. Just because the Calendar tells me September 9th is around the corner, and 2007 was a decade ago, I have been waking up feeling a bit different lately. The Mind is a mysterious thing...a certain day, a certain place, a certain sound, or a certain smell will bring it all flooding back with no way of controlling it. I've said it before, and I'll say it again, as much as these times upset me, a part of me is glad they do...if they ever don't, I won't have only lost Darrel, I'll have lost myself as well. 

No one will ever spend more time, or know more about that child than his/her parents.  We were their World, and they were ours.  Because of this, many parents like myself often struggle and go to great lengths to safeguard all of the precious and brief moments that were spent with that child.  Some say that the Greatest Fear a Grieving Parent has is that their child will be forgotten, even by themselves in some way. I believe this to be true, and very much the case.  That is why I do these blogs.  Darrel is always with me in the here and now.  I retell stories that will often make me sad, and miss him more, but at the same time can bring a smile to my face, as I know I had a Front Row seat to the life of such a remarkable young man...from the very beginning until the far too soon conclusion.  Only his mother and I will ever to able to say that.  My Blogs may introduce Darrel to those who will never get to meet him, but they also serve as a back-up memory for me.  Try as I might, I can not possibly remember it all that happened over the years.  Revisiting older Posts also gives me insights into what was going through my own mind as the events continued to unfold. I am thankful they are a resource I can call upon now, and in the future.

Cancer, in its many forms, has no doubt touched the lives of almost everyone reading this Post.  Currently, I have two people close to me who are under going treatments at Grand River Hospital in Kitchener. I have found myself walking the halls of a hospital that I haven't been in for 10 years.  For 2 years, if Darrel wasn't at Home, he was either at the Hospital for Sick Children in Toronto, or at Grand River Hospital.  The Staff in Kitchener treated him like a King every time he was there, and this is greatly appreciated by me still to this day (Special thanks to Dr. Wilson and Nurse Patti for even making a special visit to Fergus on Darrel's last day).  I know that these people I care about are in excellent hands at this facility.


With the discussion that central venous catheter might need to be put in place for one of them to receive their chemotherapy, Darrel's voice immediately shouted in my mind "It's A Hickman!!" There are several kinds of Central Line ports that are commonly used during cancer treatments, such as a Double-Lumen or a Hickman.  For Darrel, it was a Hickman Line.  He was always very observant when the nurses came in to give him medications or flush his line while in the hospital,  and Darrel could easily tell if a nurse was not entirely sure how to proceed. This was mainly at Grand River, as they did not have a separate Ward for Children's Oncology (therefore the Staff wouldn't be as familiar with all the equipment), but it did happen occasionally in Toronto as well.  If Darrel felt the nurse was hesitating for too long, he would not so calmly let her know that she was in fact dealing with a Hickman!  The nurse would then look at either parent in the room for confirmation, then continue to complete the tasks at hand. He was never too shy to inform them if he believed something wasn't being done properly, as they literally had his life in their hands.  As Doctor Darrel's intuition was usually correct, I couldn't really tell him not to voice his concerns.

In moments of personal reflection, I think most of us look back upon our lives, regardless of how old we are at the time, and try and pinpoint the turning points that happened to us, and that set us off in a new direction.  These could range from the Happy: Graduation; New Job; Marriage; Birth of your First Child...to the Sad: Medical Issue; Accident; Divorce; or Death of a Loved One.  Having contended with all of these, in varying degrees, losing Darrel ten years ago today has, and will always have the greatest impact on all that I am, and all that I will be.  I am NOT living in the past, though I've been told that more than once, but the memories of the loss and pain thrust upon myself and my family that day can not be overlooked or understated!  I am confident that there are many more Highs and Lows ahead of me, but I sincerely doubt any will match far reaching scope of THAT day.  I continue to move forward and move on, but to close the Door on that part of my past would be impossible to achieve, not that I would ever try to. 


Love and Miss You Little Man

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Other Things To Mention


- For another year, Darrel's Playground was pleased to serve as the Canadian Administrator for the International Neuroblastoma Awareness Week, which ran from June 12 - June 18, 2017.  Thank You to everyone who Liked, Shared, and/or Posted on our Facebook and Twitter Pages.

​https://www.facebook.com/NBawarenessweek/

- Childhood Cancer Canada relaunched their Hero Shirt Program this year, and Darrel once again was included (in the "E").  Thank You to everyone who purchased a shirt.  Orders can still be made at:

https://teesforthepeople.com/products/i-love


- The remaining Legal Matters between Darrel's mother and I were finally resolved this past July.  Though not everything turned out the way I had hoped, having Kira, Lauren and Darrel all under the same roof as me once again makes the entire drawn out procedure worthwhile in the long run.


Here is a Link to an Article I found on Grieving Parents:

https://themighty.com/2016/01/the-greatest-fear-of-a-grieving-parent/




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Please remember to Go Gold in September for Childhood Cancer Awareness Month.  With your support, we can move Together Towards A Cure!

"As my memory rests 
But never forgets what I lost 
Wake Me Up When September Ends" ~ Green Day

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Sept 9/16 - Photos In A Frame

9/9/2016

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​Nine years...How is that even possible of being how long Darrel has been gone???  Milestones are supposed to be reached for pleasant memories and events, yet September 9th is not a happy time for reflection, but most certainly worthy of remembering.  I always try and post a Blog on May 26th and September 9th, but as the years go by, there is so little new to say about Darrel that hasn't been said countless times.  I can proudly talk about what Kira and Lauren have currently been up to, which I will always do, but when it comes to Darrel, that just can't be done.  

On my wall, there are graduation pictures hanging of both my daughters, but there will never be one for my son, not even one of the cheesy and almost pointless photos they now take for graduating kindergarten (though I ordered them and cherish them all the same). With each passing year, the photo of a young boy in between photos of two young women may seem out of place at first glance.  When new visitors come over to the apartment, looking at these pictures is often their initial introduction to the fact our family is missing an important piece that can not be ever found. Every picture tells a story, but there are very few people that actually want to know the story that goes along with contents of my photo albums. When it comes to childhood cancer, or facing the reality that there are very sick children in a modern and prosperous country like Canada, most people would rather change the subject or the TV channel.  That is a luxury and an option that I can never have again.  To have no pictures of Darrel up would be a disservice to his memory, but to deny any of your children their rightful place in your life and in your heart, whether living or deceased is something that I will never do, or understand.  There is nothing you can do or say that will ever fully and completely replace what has been lost, though some choices could make the void seem more manageable to some people. 

September is Childhood Cancer Awareness Month, and for many families, this week marked the beginning of the new school year. Darrel probably would have been entering Grade 12, with all the uncertainty and big decisions on what and where you would be headed after you received your diploma.  For Darrel's sisters, they have their near future paths already mapped out for themselves. Kira is back in St. Catharines for her second year at Brock University.  In addition to her studies, she has taken on a Residence Don position, which I'm sure she will excel at, and provide her with invaluable experiences for both her personal and career development. Lauren will be starting her apprenticeship at a company in Guelph next week, which will be equally rewarding for her as well.

Not much has changed in my situation since my last post.  I am somewhat hopeful that all the remaining legal matters can be resolved sooner rather than later, but this optimism is tainted with the reality that it takes the willingness of both parties to move things to a successful conclusion. While I am open to re-entering the Dating Scene, so much has changed since that last time I was 'available', it is both an exciting and scary prospect at the same time.  I may not be considered old, but I certainly won't be categorized as been that young either.  Life has given me quite a few unexpected twists and turns thus far, and I'm sure many more lay ahead in my future. Approaching each day and each situation with no expectations is really about all any of us can do, but that is often easier said than done.


Thank you once again to everyone who continues to be there when I need a sounding wall, or even a shoulder to lean on.  It is greatly appreciated.

Love and Miss You Little Man


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Sept 10/16

​September 9th Follow Up: Yesterday, I did receive a few messages from friends worried about my state of mind, as they felt some of my posts were too dark. While their concern was genuine and appreciated, it was lacking in understanding of what I, and many other parents who have lost a child (or even losing their children) must cope with on a daily basis.

My Blog yesterday talked about the pictures on my Wall and in my Photo Albums. Those photos I decide to Post on Social Media show usually show Darrel with a smile and that amazing twinkle in his eyes. I have others that I do not share, with his eyes deeply sunken in, his frail bones almost visible through his skin, and the look of pain on his face that would give you nightmares. The smiles may be easier for you to view, but I know what was going on with his health and treatments when they were taken, and know what Darrel was enduring behind that brave face...so those photos are as painful to me as the ones I do not show. Every picture does tell a story, but even after all I have shared in blogs and pictures over the years, there is so much of the story you will never know.

While I post about Childhood Cancer throughout the year, on September the 9th, I give myself permission to feel everything, and open up the flood gates of emotion that I try to contain the rest of the year. Posting about Bacon, Star Trek, or Music are all fine and good, but there is a sadness within me that will never disappear, though I do not willing put it on display most of the time.

I do not let what has happened to Darrel and my Family dictate everything I do, but it IS part of everything I do all the same. Your concern is appreciated, but a few comments crossed the line into judging me, which I will not tolerate from anyone who has not experienced exactly all that I have...and I am the only person that can say that.
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If you can not grasp what I am attempting to convey here, please feel free to remove yourselves from this Page. I realize most of your intentions were good, but that is not how they came across on my end.
Thank You



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Sept 9/15 - Moving In, Out...and On 

9/9/2015

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After 8 years now, September 9, 2007 remains the date that forever changed my family, but since then we have all moved forward the best we can, some more successfully than others.  Memories of Darrel still have an impact some of the decisions I make today, as well as effect how I interpret information I receive in person or through the media at large.  You can not help but be profoundly altered after suffering a loss of such a magnitude, as the ripples from that loss can not be easily overlooked or ignored. That being said, picking up the pieces can be easier said than done, especially when one of the pieces is impossible to replace. In Life, moving forward is the only option, so that is what we must do.

Since my last blog, the biggest and happiest of these changes is that Kira and Lauren made the decision last month to move in with me at the apartment (the dogs came too, but they didn't have a vote on the matter).  There has been somewhat of learning curve as we all adjust to the new living arrangements, but for the most part, I think the process has gone quite smoothly. The Apartment is now full of love and laughter again (along with the yapping dogs), a scattering of things you would expect to find with teenage girls around, and of course a selection of Lauren's Art too.  Whether it be sounds of MarioKart or Zelda coming from the Wii or the smells of coming from the kitchen, I am overjoyed by this turn of events. After staying alone here the last year, I have taken full advantage of Kira wanting to cook and bake for Lauren and I.  Having the three of us sitting around the same Dinner Table together night after night serves as affirmation of how I have conducted myself in the most recent past, and maintained a positive relationship with Kira and Lauren since April 2014. The ongoing issues I had, and continue to have with their mother have not had any bearing on my love and commitment to my daughters, and that is how it should be.

Kira did not have much time to unpack and get settled here, as she started her first year at Brock University a few days ago.  In my mind, it wasn't that long ago that I was at university, but a quick glance at the calendar says otherwise. St. Catharines really isn't that far away, but the distance is enough I won't see very much of Kira between now and May.  With Lauren entering her final year at high school, it is probably only a matter of time before she seeks out new horizons for herself too.  But for now, I'll enjoy this time together while the opportunity presents itself.

With September being Childhood Cancer Awareness Month, I have been busy spreading the word that more could and should be done in finding a cure, as well as supporting the children that are currently in treatment, and their respective families.  As the federal election grows closer in Canada, and the race for the White House gets underway in the United States, it is discouraging how little, if any, discussion is taking place on the issue of childhood cancer. While the headlines about a single lion being killed in Africa, or the image of a young Syrian boy washed up on the beach can ignite the emotions of the public in both countries to demand a response, many simply turn the channel if anyone brings up children with cancer. Each of these are depressing and disheartening topics, but ALL are worthy of your attention and support.  It does not take much of an effort to make a tangible difference to the lives of someone in your community. It may not be front page news, but please consider doing what you can. Believe me, it will be appreciated by those who benefit from your kindness.

Thank You


Love and Miss You Little Man
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Made by Madissen. Thank You
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    The majority of all these entries were written by Darrel's father, Stephen.  For those that are not, efforts have been made to give proper credit where it is due.

    The bulk of the posts are in the June 2011 Archives Section, as that is when I transferred them over to this site.  Category Tags should allow you to find entries easier.

    I've tried to correct spacing issues on many of the entries, as most of the older ones have been copied from different sites I've used in the past. I apologize if some have been overlooked.

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